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What
is Fibromyalgia?
Fibromyalgia “syndrome” (FMS) is
often called the “invisible disease,” because outwardly, we may look
perfectly healthy. Inside, however, we may have intense pain
throughout our bodies. We may be constantly fatigued and weak, or
we may be dizzy, confused, lacking sleep, suffering digestive disorders,
and generally living a poor quality of life.
There is no steadfast cause or cure for FMS, but there are ways
to treat the symptoms and improve the quality of life1.
A 1992 College of Rheumatology study found that the impact of FMS on
your life is as bad, or worse, than Rheumatoid Arthritis.
They listed one major factor in this as “clinical bias.”
FMS patients don’t look sick, and their symptoms vary, so they
are often misunderstood and disbelieved by clinicians, family and
friends.
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FMS
is not progressive , but symptoms may become worse if the perpetuating factors
are not identified and dealt with promptly and adequately.
You have widespread pain and wake up every morning feeling like
you’ve been run over by a truck.
You may have headaches and loss of balance, dizziness as you look
both ways when going into traffic.
You can’t always find your car in a parking lot, and even on
your best days, you feel like you have the flu.
You
may have short-term memory loss, put on weight and can’t get it off,
muscle twitches, an irritable bowel, grinding of the teeth during the
night, and experience sudden and unexplained dizziness.
Many
women experience painful intercourse, and men suffer with impotence.
One of the first things that makes us
realize that there is something wrong is the inability to perform as
intellectually as we once did. We
seemingly accept the increasing pain, the muscle spasms and the
insomnia, but when we keep forgetting our own phone number, red flags go
up.
We
lose things – misplace things – we forget where we’re going –
shopping lists lose their importance because we keep forgetting to bring
them. We forget friend’s
names, stop in mid-conversation because we’ve forgotten what we were
talking about and where we left off. We can enter a room and not
remember what we came in for, or we sometimes wonder why we entered it
at all.
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We
laugh about it, learn to “cover” the errors with laughter, and
silently start questioning our own sanity.
We worry about brain tumors and Alzheimer’s disease because we
know the problem is far more extensive than other people realize.
If we tell our doctor about our problems, we are often easily
placated by the doctor’s words, such as, “everyone starts having
trouble as they get older. It’s
“just” FMS, or you’re depressed."
So
we joke about it with each other – further dismissing its importance.
Someone once said, “if it wasn’t for brainfog, I wouldn’t
get any exercise!”
This
is a twenty-four hour, seven day-a-week continual struggle to appear and
act normal2.
Other
symptoms that can and do relate to FMS are listed below:
Myofascial Pain
Syndrome (MPS)
Chronic
Fatigue Syndrome ( CFS)
Irritable
Bowel Syndrome (IBS)
Depression
Hair
Loss
Anxiety/Panic
Attacks
Migraine
Headaches
Restless
Leg Syndrome
Muscle
spasms and Severe Muscle Weakness
Sleep
Disturbance/Non Restorative Sleep
“Fibrofog”
– Cognitive function problems
Sensitivity
Amplification
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Symptoms
can be severe, yet blood tests, X-rays and other common diagnostic tests
do not show FMS. This means that we presently lack knowledge of how to test for FMS. If your medical care provider has been trained to test for
this syndrome,
more than likely a series of blood work-ups will be done to rule out
other maladies that can and do mimic FMS.
Once
any other malady is ruled out, your doctor will check your “Tender
Points.”
The
definition states that you must have at least 11 out of 18 specified
tender points in all four quadrants of your body for a minimum duration
of three months to qualify for a diagnosis of FMS.
Tender points hurt when pressed, but do not refer pain elsewhere
– that is, pressing a tender point does not cause pain in some other
part of the body. Enough pressure
must be used by your doctor to whiten his thumbnail3.
The
medical provider you seek, the medications he will approve, (and this is
crucial since many will not recognize that, at times, opioids are a last
resort), your symptoms that are believed to be one hundred per-cent serious, and
careful and continuous follow
ups until a regimen is found to satisfactorily return some kind of
quality in your life, is imperative.
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If
you feel any dissatisfaction whatsoever, please do yourself a favor and
“fire” your physician and start to find one that believes you,
listens to you, and is willing to go the whole route to do whatever is
necessary. Believe me, they are out there.
Always
remember that communication is a must and understand that there are many medications you
will tolerate well, and some not so well, so always try (when starting out on
a new medication) to either keep a diary of how you feel, or better yet,
have a family member keep an eye on your behavior for any changes that
you yourself do not recognize to be life-threatening.
Remember,
I’m not a doctor and much of the above was obtained from valuable
Fibromyalgia web
sites (as noted.) Only your doctor
can make a diagnosis, treat, and administer medications.
You play a hefty role in the outcome, so don’t be afraid to ask
and ask again. If you are not sure of something, or are concerned with
anything that has to do with your health, you must take control and
become accountable.
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